Share Your Story



Welcome! You can help other families dealing with alloimmunization and HDFN. Moms repeatedly say that hearing what other families went through is one of the biggest blessings. There are so many scary things on the internet about alloantibodies during pregnancy and most depict dire outcomes. In reality women can have babies who were unaffected by HDFN, who had mild cases of HDFN (only needed phototherapy), or who needed transfusions after birth. There are also families whose stories include intrauterine transfusions (IUTs) to correct fetal anemia, and some families who have lost their precious baby. All stories are important. Whatever your alloimmunization story involved, you can help other families by opening a window into what it was like for you and your family. You can provide hope, encouragement, and tips to help make someone else’s journey a little bit easier.

 


My Allo Story

  • What is your name?
  • What is your email address? We will never use your email address for anything besides contacting you about your story.
  • What antibody/antibodies do you have?
  • What was your experience with alloimmunization and HDFN? What is your story?
  • If you could say something to providers everywhere, what would you say?
  • If you could ask the scientific community to do or to research something, what would it be?
  • Do you have any advice or encouragement for families dealing with HDFN?
  • Do you have a photo of your baby or family that you would like to share?
    Drop files here or

 

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We Are Here To Help.

Let us know what you need as a member of the alloimmunized community. Do you need more resources? Help finding a medical alert card? Ideas for how to grow your family? Contact us and let us know how we can serve you.